Seems now is a good time to report a bit of family stories past. Years and years ago when a team of experts took two long days to diagnose my daughter with AS, they were not hopeful she would do much beyond high school, never do well in a physical program demanding bilateral coordination, never escape her SID, move beyond social incompetence to a pattern of getting along within and beyond herself. Hmmm. Years of intervention and tons of hard work on her part and today she is preparing to graduate from university, after which she will go to work (gainfully employed) in public policy at the state capital. Should she choose, she could return to a swimming pool at anytime to swim the long distances she swam in school sports or hit the volleyball court for a game based on the skills she proved she could master when she played on traveling teams and in high school. Those who tell you people with ASD cannot, do not know of what they speak.
Seems now is a good time to report a bit of family stories past. Years and years ago when a team of experts took two long days to diagnose my daughter with AS, they were not hopeful she would do much beyond high school, never do well in a physical program demanding bilateral coordination, never escape her SID, move beyond social incompetence to a pattern of getting along within and beyond herself. Hmmm. Years of intervention and tons of hard work on her part and today she is preparing to graduate from university, after which she will go to work (gainfully employed) in public policy at the state capital. Should she choose, she could return to a swimming pool at anytime to swim the long distances she swam in school sports or hit the volleyball court for a game based on the skills she proved she could master when she played on traveling teams and in high school. Those who tell you people with ASD cannot, do not know of what they speak.
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Now, my response to Suzanne Wright's Call to Action in Washington-
I know full well the emotional, physical and financial cost that lurks front and center, as well as behind the scenes of autism. My father, daughter, cousin's children and cousin's cousin's children have some form of autism. So do I. Not one of us, nor any of the tens of thousands of people I have interacted with from all over the world through the past decade and a half would describe our children or our autistic friends in the terms you do, Mrs. Wright. We too wish for more support, better futures, a fine moral response to our challenges, but we wish for this plan to be seen from a place of hope and promise, of recognition of the things that are possible and grand when autism is part of our plan. I and countless others, wish for a plan that focuses on our strengths, not our fears nor our weaknesses. Yes, we need financial support for therapies and counsel and comfort just as anyone who has a challenge before them does. However, please change your rhetoric from "those who can't or won't" to "those who can and will". Please see our community as an asset, not as a forlorn and strangling liability. We are assets that may well need hands held out for assistance toward our goals and abilities, but we are not (and please read this with emphasis) in need of hands held up to block us with the message that implies "You people with autism are nothing much more than a burden on us and until you are reprogrammed to be just like everyone else, we cannot tolerate the toll you put on the rest of us." Your commitment toward helping people with autism live safe and secure lives is to be applauded. Your commitment to the belief that the autistic community is a community built on crisis rather than promising possibilities is deplorable. |
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