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This was an awesome experience. I encourage anyone interested in 3 intense days of thought provoking and invaluable time with leading scientists, to sign up as a consumer reviewer for the Department of Defense Consumer Participation on Scientific Peer Review Panels. Information on how to sign up, follows the Press Release.
For Immediate Press Release:
SCIENTIFIC PEER REVIEW OF THE AUTISM RESEARCH PROGRAM FOR THE DEPARTMENT OF DEFENSE
The Autism Research Program (ARP) research advocate Liane Holliday Willey recently participated in the evaluation of research applications submitted to the ARP sponsored by the Department of Defense. Liane Holliday Willey was nominated for participation in the program by the Asperger Syndrome & High Functioning Autism Association New York. As a consumer reviewer, she was a full voting member, (along with prominent scientists) at meetings to help determine how the $ 7.5 million appropriated by Congress for Fiscal Year 2017 will be spent on autism research.
Consumer reviewers represent the collective view of those living with autism by preparing comments on the impact of the research on issues such as diagnosis, treatment, and quality of life. When commenting on serving as a consumer reviewer, Liane Holliday Willey said that, “It was an honor to serve the autism community, and fascinating to be part of a collective that is working so diligently toward a better understanding of autism and autism supports.”
Consumer advocates and scientists have worked together in this unique partnership to evaluate the scientific merit of research applications since 2007. Colonel Wanda L. Salzer, M.D., Director of the Congressionally Directed Medical Research Programs expressed her appreciation for the consumer advocates perspective during the scientific review sessions. “The Consumer Reviewers on each panel are instrumental in helping the scientists understand the patient’s perspective and provide valuable insight into the potential impact of the proposed project. They bring with them a sense of urgency and remind us all, of the human element involved in medical research.”
Scientists applying propose to conduct innovative research focused on the understanding of autism and improving the lives of those with autism. The ARP fills important gaps not addressed by other funding agencies by supporting groundbreaking, high-risk, high-gain research while encouraging out-of-the-box thinking.
More information about the Department of Defense ARP is available at the Website: http://cdmrp.army.mil.
_______
Media Contact:
Erin Bolling, Public Affairs, 301-619-7783
[email protected]
For Immediate Press Release:
SCIENTIFIC PEER REVIEW OF THE AUTISM RESEARCH PROGRAM FOR THE DEPARTMENT OF DEFENSE
The Autism Research Program (ARP) research advocate Liane Holliday Willey recently participated in the evaluation of research applications submitted to the ARP sponsored by the Department of Defense. Liane Holliday Willey was nominated for participation in the program by the Asperger Syndrome & High Functioning Autism Association New York. As a consumer reviewer, she was a full voting member, (along with prominent scientists) at meetings to help determine how the $ 7.5 million appropriated by Congress for Fiscal Year 2017 will be spent on autism research.
Consumer reviewers represent the collective view of those living with autism by preparing comments on the impact of the research on issues such as diagnosis, treatment, and quality of life. When commenting on serving as a consumer reviewer, Liane Holliday Willey said that, “It was an honor to serve the autism community, and fascinating to be part of a collective that is working so diligently toward a better understanding of autism and autism supports.”
Consumer advocates and scientists have worked together in this unique partnership to evaluate the scientific merit of research applications since 2007. Colonel Wanda L. Salzer, M.D., Director of the Congressionally Directed Medical Research Programs expressed her appreciation for the consumer advocates perspective during the scientific review sessions. “The Consumer Reviewers on each panel are instrumental in helping the scientists understand the patient’s perspective and provide valuable insight into the potential impact of the proposed project. They bring with them a sense of urgency and remind us all, of the human element involved in medical research.”
Scientists applying propose to conduct innovative research focused on the understanding of autism and improving the lives of those with autism. The ARP fills important gaps not addressed by other funding agencies by supporting groundbreaking, high-risk, high-gain research while encouraging out-of-the-box thinking.
More information about the Department of Defense ARP is available at the Website: http://cdmrp.army.mil.
_______
Media Contact:
Erin Bolling, Public Affairs, 301-619-7783
[email protected]
With thanks to everyone who has ever covered my work, here are a few pieces from various media sources.
Hidden Disabilities recap presented by 2017 Cincinnati ReelAbilities Film Festival
Interview with Q102 dj Jenn In Cincinnati. http://www.wkrq.com/2016/03/07/jenn-chats-with-author-liane-holliday/?platform=hootsuite
Thrive with Aspergers 2015: What Liane Learned ~ Pretending To Be Normal An Interview With Liane Holliday Wiley
Metro Parent 2015: Liane Holliday Willey Talks About Autism, Her Books and More
UK Daily Mail On Line 2014: Is your man wired differently? Signs that he may have Asperger's syndrome
Parkway High School St. Louis Alumni Award 2014: Interview
WGVU Newsmakers 2013: Life with Asperger Syndrome
Prezi by Alexa MacKinnon 2013: BTW- many thanks to Alexa for finding me a suitable subject :-)
Autism Empowerment Radio Guest 2012: Interview
WIRED (reprinted from geekmom.com) 2011: Asperger Self-Help Author An Aspie Herself
LA Times 2011: Although Autism, Asperger's Run in Families, Therapy Makes a Difference
New York Times 2009: Asperger’s Syndrome, on Screen and in Life
ABC News 2008: The Dangers of Autism
Newsweek 2008: Why Girls with Asperger's Might Not Be Diagnosed
USA Today 2007: A long shadow is lifted on Asperger's in adults
The very day I lost my best friend (my father), my family and I went to see the film Adam, knowing it was about a young man with Asperger syndrome. Little did I know, my first book, Pretending to be Normal had an itty bitty part in the film. The film's writer/director Max Mayer will always be one of my heroes! Thanks, Max, for showing people with Asperger syndrome have intelligence, a sense of humor, and the notion to be in loving relationships.
